Participatory design with proxies: developing a desktop-PDA system to support people with aphasia

TitleParticipatory design with proxies: developing a desktop-PDA system to support people with aphasia
Publication TypeConference Papers
Year of Publication2006
AuthorsBoyd-Graber J, Nikolova SS, Moffatt KA, Kin KC, Lee JY, Mackey LW, Tremaine MM, Klawe MM
Conference NameProceedings of the SIGCHI conference on Human Factors in computing systems
Date Published2006///
Conference LocationNew York, NY, USA
ISBN Number1-59593-372-7
Keywordsaphasia, assistive technology, multi-modal interfaces, participatory design

In this paper, we describe the design and preliminary evaluation of a hybrid desktop-handheld system developed to support individuals with aphasia, a disorder which impairs the ability to speak, read, write, or understand language. The system allows its users to develop speech communication through images and sound on a desktop computer and download this speech to a mobile device that can then support communication outside the home. Using a desktop computer for input addresses some of this population's difficulties interacting with handheld devices, while the mobile device addresses stigma and portability issues. A modified participatory design approach was used in which proxies, that is, speech-language pathologists who work with aphasic individuals, assumed the role normally filled by users. This was done because of the difficulties in communicating with the target population and the high variability in aphasic disorders. In addition, the paper presents a case study of the proxy-use participatory design process that illustrates how different interview techniques resulted in different user feedback.